Hello everyone! I know I know...I haven't been very good at updating everyone. BUT...that just means I'm feeling better and I'm out and about! Since it's been so long I'll back up a bit! Last update was the great news that I did not have to do chemo! My oncotype test results came back at 12! I was hoping for under 18 but would have been happy with anything under 25! So 12 is awesome!! With that news we moved forward with radiation. Of course you know me I had already met with the radiologist before we even had the results. Some people call that proactive but I call it telling the universe what is going to happen! Just to make sure everything else was good I also did a bone scan and a PET scan. All clear on all fronts! Hopefully I'm done with the scans and the nuclear medicine for awhile! It really is such a double edge sword. You read all of these things that X-Ray's and scans themselves cause cancer. When you have cancer it seems that you are doing some kinda of scan every other day!
So...radiation! Or RADS as it's so lovingly called. Well its not exactly rad...BUT it isn't so bad. ;) So far! Today marks my 7th treatment. I will do a total of 33 sessions. I go every morning at 9:30am, five days a week. It looks like I will finish on November 7th. Honestly it's super easy. Door to door the whole things takes about 30 minutes. Radiation is cumulative so it takes a few weeks for any side effects to kick in. So far so good. I have a little bit of a blush as they call it but I'm hoping that is all it does. One of the side effects is that your skin burns, just like a sunburn. So when I say blush it just means my skin is a little pink. Hey...I'm a white girl...its bound to happen! Another side effect is fatigue. Because I'm generally fit and active they are saying it may not hit me too hard until the end. Remember it' cumulative so sometimes you're hit the hardest at the very end and 10-14 days after your last treatment.
Physically I'm doing great! Scars are healing well and I feel pretty good. I definitely tire out a lot quicker then usual and I can not be in the sun. I'm learning to listen to my body and rest when I need to. Emotionally I'm going a little stir crazy. If you know me you know I'm not one to sit still. Not being able to travel and work is killing me. Andre has been amazing at dealing with my "I'm bored: and "I'm out of the loop" temper tantrums.
Well....that's it for now! I'm really looking forward to my birthday this weekend! Lot's to celebrate!!
Tuesday, October 2, 2012
Wednesday, September 12, 2012
No Chemo!
While we were waiting for the test results I went ahead and met with my radiologist and finished my fertility treatments. Everything moved smoothly and quickly with the fertility treatments. Other then being time consuming and expensive it was pretty painless. If I ever need to give myself injections for anything again it will be a breeze! The aftermath of retrieval on the other hand has not been fun. My retrieval was schedule for Monday morning. I guess I need to start mentioning to any anesthesiologist that I have the tolerance of a horse! Meaning it takes A LOT to knock me out and take care of the pain. Most people are pretty much already asleep by the time they wheel them into the room. No...not me I was still talking when they were ready to start the procedure. I'm not sure if they wanted to knock me out or just shut me up! Regardless it took a lot more then anticipated. Which I've heard often! (yes that applies to shutting me up as well) I take after my father in this regard. All in all I was in and out in about three hours! My Dr was very happy they were able to retrieve 16 eggs. From what I understand that is excellent! Now the recovery on the other hand has not been excelent. I wont go into detail but imagine the worst gas pain you have ever had...like stop you in your track...double over in pain, pain! Yep...that's what I've experienced the last two days. I just wish it was just gas...I would know how to deal with that! Andre wouldn't be happy but I would! hee hee! I'm going back in for a check up tomorrow and hopefully it will start subsiding and is normal.
Ok, so whats next! Radiation then if all goes well back to life with some hormone therapy thrown in! Friday I have a CT scan and meeting with my radiologist to "map" my chest. They are actually going to tattoo four dots on my chest. These dots will guide them where the "rays" need to go. All of this is the ensure they are hitting the breast and chest instead of other vital organs! ie heart and lungs! It's really all rather mathematical and exact to each person. Monday a bone scan, and Wednesday a PET scan. Once all of that is done I can start my radiation. I will go five days a week for 6-7 weeks. Each appointment will take about 30 minutes. Once I complete radiation I will then start hormone therapy for two years. Most people do five but I'll go into all of that fun stuff in another post!
Ok..back to bad TV! Thanks for reading! Love you all and thank you for all of your prayers and support!
xoxo,
Sonja
Thursday, August 30, 2012
Napkin on the window
To stop
or not to stop…that is the question! Anyone that lives in an urban area is use
to homeless people. You actually recognize them and even know some of them by
name. However, in general, you do
nothing more then smile, give a nod and go on with your day. Quietly judging
and occasional taking a second to be thankful for all that you have. Yesterday
was a little different. My friend Chris and I were going to have lunch. As I’m
exiting the car continuing to tell him the ups and downs and waiting to find out
about chemo and radiation a homeless kid on the street chimes in. We stopped for a moment and listened to him.
He was telling us about a book and how it healed him of several things. We had a little banter and then went into the
restaurant. When we finished with lunch and went back to the car we found the
note below on the window. By this time the kid had walked away. I folded up the
note and we left. BUT what an impression he made on me. I want to know his
story! Is he homeless? Is he on drugs? Is he crazy? Was he kicked out of his
house for some reason out of is control? Or is he exactly where he wants to be?
I want to go back and find him, but what would I say? What would I do? Or is it
just a moment of pay it forward? Regardless I appreciate the time he took to
offer up his advice. I hope in some way that maybe this blog might be “my
napkin on the window” for someone else.
Ok…enough
of my musing onto the update. Until today the last few days have been pretty
uneventful. With everything I’ve been through in the last month that is a nice
change. Monday the 27th was exactly a month since my diagnosis as well as Santé’s
16th birthday! I actually felt well enough have lunch with Cindy and Kim,
go to Santé’s basketball game AND have dinner!!
I was pretty much down for the count on Tuesday but it was worth it! I’m
still in pain but it is getting better everyday.
Today was
my last post op follow up with my PS. She removed the remaining sterile strips
(tape) took my “after” photos and gave me the thumbs up! Once I see my
oncologist and radiologist next week I’ll have a better idea of when I start
radiation and I will see her again to confirm when I’m physically ready to
start. From there we moved onto the fertility doctor. Now some of you may be wondering why a
fertility doctor. Well with chemo not off the table and radiation imminent, freezing eggs is my best “insurance” incase the cancer treatments kill a lot of
good cells (and fertility) as well! Which they are known to do. So a new car or a down payment on a house in
TX later I actually started today. We were just expecting a
consultation but with time being of the essence I did my first injection today
and I will go back tomorrow after my blood work is back for the rest of the treatment.
Basically they will teach me how to give myself the injections and I will give
myself two injections a day for the next 12-15 days. Then when I’m ready it will be a quick out
patient procedure to “harvest” my eggs and freeze them. Whoopie more anesthesia and surgery. Well….if
it gives me piece of mind then I’m all for it. Fingers crossed that it’s an
insurance policy we will not have to cash!
So…the
other important stuff!
September
5th – Appointment with an oncologist
September
7th – Appointment with alternative Doctor – to discuss adjunctive therapy
or alternatives to chemo and hormone therapy
September
10 – appointment with my radiologist
TBD - Chemo and Radiology
TBD - Chemo and Radiology
Still
waiting on the BRAC1 and Onco test results. Well…until then!
Friday, August 24, 2012
Cancer free...technically!
Hello everyone! Sorry I've been a bit MIA lately. The surgery took
a lot of out me and I've pretty much been down for the count. I've had some
good days and some bad days but over all I would say they have been pretty
good. The last two days have been eventful! So....to catch everyone up!

So…today was my follow up with my breast surgeon. Everything looks
good with my lymph node incision. It is definitely sore and sensitive but hopefully that will go away soon. I can almost fully extend my arm
above my head, which I guess is above average this soon after surgery. I’ll
settle for average at this point so above average is stellar!
Ok, the important stuff…I am technically cancer free!! :) Yippee! Surgery was just the beginning but it was a
great start! The entire margin came back clean. What that means is they are
confident that they were able to remove all of the cancer and a good portion of
healthy tissue around the cancer. The other good news is the lymph nodes came
back negative. Well kind of! The cancer did spread to A lymph node (meaning
one) but they removed it. There were also a few cancer cells in the other nodes
but not enough for it to be considered positive. There were a few bad
notes. Turns out the cancer was a lot worse
then anticipated. I had multiple tumors malignant and benign. The three largest
malignant were 3.6cm, 2.4cm, and 1.4cm. Sounds
like there was a big ol cancer party in my boob! Sorry cancer this party is
over! In the words of my surgeon we really did catch everything just in time. It was on the verge of turning into a body party instead of just a boob party!
These are technical terms y'all ;)
Ok, so what does all of
this mean? Good question! Now is another game of hurry up and wait. Currently
we are waiting on the chemosensativity testing. Since the tumors were larger
and multiple chemo therapy is not off the table yet. However, I have chosen to
do an “onc” test on the tumor. This will tell us if my cancer will even respond
to chemotherapy. Why do chemo if it isn’t even going to be effective! I am also
waiting on a BRAC1 test, which will tell us if I have the cancer gene. The out
come of both of these test will help determine my next step. So here we are
again…waiting. I will see my oncologist and radiologist in the next two weeks
to figure everything out. So stay tuned!
Sunday, August 19, 2012
Hello from the flip side!
Well...I
finally have a little bit of strength and clarity to send my own update! I see
that Andre has done an amazing job of keeping you all informed and with his own
flare. As you can imagine he has been amazing and words cannot express my
gratitude. BUT..I’ve got the rest of my life to say thank you and he's not
quiet done taking care of me just yet! As much as I wish this part of the
journey were over I've still got a lot of recovery ahead.
Once
again cancer just seems to be one waiting game after another. First biopsy
results, then schedule surgery, now waiting for the pathology from the tumor
and lymph nodes. It turns out some of my lymph nodes were actually bigger then
my tumor. Not sure if that’s bad or good yet! I’m hoping it just means they
were doing their job and fighting the cancer from spreading. My surgeon asked me to check in on Monday to
see if my path results were back but he figured it would probably be Tuesday or
so before they had everything. Once they are back I will schedule a meeting
with him and we will finally really know what the next step will be. Regardless
radiation will still be on the table.
So for
now we wait…and I heal! The portable air conditioner arrived yesterday! It
really is a godsend! No central air during this heat wave was no bueno! Plus
Andre was able to get a little aggression out by breaking the window to put the
hose through. We are not officially ghetto…cardboard and masking tape and all! Hey.. it works!!
I am
slowly getting back on line and will try and respond to everyone. The love and
prayers have been overwhelming and we really appreciate it. The flowers are all holding up nicely and
have brightened up the apartment! I even had enough strength to play a little
Cards Again Humanity with Stephanie and Andre last night. Gotta love a man with
the same sick sense of humor as me…below is Andre’s answer to one
Well, I promise
to try and keep everyone updated. I’m still really weak and making it from the
couch to the bathroom is a choir but everyday does get better. All I really
want now is a blowout and a proper shower! Hopefully in the next few days!
However, Andre doesn’t seem to be complaining about having to give me a sponge
bath. Ha, I can’t even brush my own hair
so I’ll take it! So for now i will sit back and enjoy this beautiful salad Andre just prepared for me...chicken and all!
Wednesday, August 15, 2012
war is declared and battle come down on cancer!
bonjour sonjas friends,
this is andre` sonjas best friend, lover and life partner, some of you know me and some of you dont but we all know and love sonja so at the end of the day we are all truly connected to one another through her love for us all. this will be my 1st post on her blog and ill try to be as funny as sonja but you know sonja shes got this wicked sense of humor, even with cancer in the shadows.
well as im here at the hospital waiting for updates i just want all of you to know shes in surgery now, the process is estimated to last 8 hours, "wow 8 fucking hours" now you all know sonja, shes looking at it as 8 hours of much needed sleep and the fact that she'll have a new set of tits by the time she wakes up, (im stoked) im quoting her here. before going into the o.r she was laughing and joking around with her team of doctors typical of sonja to poke fun at any situation no matter how serious. i mean really did you think she was just gonna sit back and let this shit get her down, hell no! sonja wins! again!
sonja has this thing about her that is so wonderful, magical at times really, her amazing outlook on everything whether positive or negative is above and beyond! im in awe of her in so many ways and for this i love her like no other! she has been my rock, she is the moon of my life! i am moved beyond words from the out pour of love, prayers, meditations and support not only from our families but from each and everyone of her friends, co-workers, past and present. your words to her have been the pilar of strength your energy has given her the courage and the attitude to kick the shit out of this, sonja can do that, kick the shit of things.
so on that note ive now gotten my 1st update from dr karlan her surgeon, he is quite pleased with the removal of the cancer we are not sure what the final size was, tbd. so phase 1 went very well, phase 2 will be several hours before we have an update, i will do my best to blog again tonight when shes out and resting.
i love and appreciate each and every one of you.
namaste,
dre`
Tuesday, August 14, 2012
Going once...going twice..Goodbye Cancer! Surgery Time
Well the day is almost here! Surgery is set for 10:30am tomorrow! I have to check in at 8:30am and they estimate it will take about 8 hours. Yes you read that correctly eight (8) hours!
Details below:
8:30am - Check in
10:30am - Surgery begins - haha which I highly doubt it will start
on time but hey...just going with what they are telling me
10:30am- 1:30pm - Tentative time
it will take for the lumpectomy and removal of lymph nodes
1:30pm - 6:30pm - Tentative time it will
take for reduction/reconstruction
6:30pm-7:30pm - Recovery
7:30pmish- Hopefully nice and
cozy in my hospital room
Location
Cedars-Sanai - Main Hospital
8700 Gracie Allen Drive - South Tower
For updates you can call the hospital directly at 310-423-5000
http://www.cedars-sinai.edu/Patients/Patient-and-Visitor-Resources/Getting-Here/
Andre will have my cell phone and computer so feel free to text or call me and he will respond! Also, his # is 818-515-6705.
![]() |
SONJA WINS - Mortal Kombat style |
I am officially radioactive! Today
I had a lymphoscintigraphy performed. Basically radioactive dye that they inject me with to help determine which lymph nodes to remove. I asked the nuclear medicine doctor if it would give me special powers?! She smiled and said I could go home and pretend that it did but I would have to turn the lights off! It's nice when your doctors have a sense of humor as well!
I had a lymphoscintigraphy performed. Basically radioactive dye that they inject me with to help determine which lymph nodes to remove. I asked the nuclear medicine doctor if it would give me special powers?! She smiled and said I could go home and pretend that it did but I would have to turn the lights off! It's nice when your doctors have a sense of humor as well!
I also had my final consultation with my plastic
surgeon. I have lots of fun pictures of me covered in purple lines.
Sorry I love you all but not posting those! At least now I have a total
understanding of exactly what and where she is cutting and what she
will be removing. It really is fascinating! TMI again but I had no
idea that you can tattoo a nipple! Fingers crossed I wake up with mine but
there is a possibility that I may not. That's a whole other
conversation entirely that I’m sure I will get to at some point!
So I’m home chilling tonight! A couple of friends are
coming over as I make soup and sauces with my awesome vitamix to freeze! I'll
make sure Andre updates my Facebook and I will try and post something
as soon as I’m up to it! You know me...it's always a party so if you are in the
area come on by the hospital! Let's see if we can get kicked out! Otherwise I
will be propped up on my couch for a few weeks!
Love you all and thank you so much for all of the prayers and
words of encouragement! Now lets go kick cancers ass!!!
Just because! I can't be the only one that see's these and wants to pull it EVERY TIME!!! |
Thursday, August 9, 2012
Patients is a virtue I do not have..

So needless to say a few fiery phone calls to people above her head from me AND Gaga, miraculously August 15th was available again. Lesson learned today is when you haven't gotten an answer from someone within a reasonable time then go straight to the source. My surgeon may get annoyed but I'm calling him directly now. I also have a complete lack of faith in his staff now. Ok, I'm exaggerating...just this one person but it's still a bitter taste.
Well...lot's more to vent about but I'll catch you up another time. Just wanted to let everyone know my surgery has been schedule for Wednesday August 15th! Fingers crossed insurance approves everything and all my pre-op test come back good.
Bring on the scalpels!
Oh and to all Born This Way Ball family travel safe and I miss you already! Be back soon!
xoxoxo
Tuesday, August 7, 2012
Test, test, and more test
Still waiting! Yep, I was joking the other day that getting this surgery scheduled reminds me of being back at WMA or The Firm. Everyone has conflicts and there are no conference rooms available. I could have booked a promo tour by the time they finally pick a date for this surgery! You would think they are Local 1! (only some of you will get how funny I just was)
So today was my "pre-op" day. Even though I have no "op" date yet! I have to say everyone at Cedars is so nice. I mean almost like Stepford nice. Dont get me wrong I totally appreciate it and it really has been a pleasant experience so far. However, I do have to wonder what kind of training they go through or what rules they have to adhere to. I do believe that it is all genuine and I would like to think that I'm a breath of fresh air and positivity. Although today I have to admit I was a little less bubbly and positive. It definitely does hit you when you are sitting alone in a surgical room with an iv that something is going on. It also really hits you when it takes the poor guy 3 times to get a vein! I warned him my veins roll and he didn't believe me. Yep...they literally will pop over to the other side or roll right out from under the needle. So as per my first suggestion he went for the hand and we finally got a good line for the IV!
Today consisted of four (4) waiting rooms, one (1) blood test, one (1) EKG, one (1) Chest X-Ray, one (1) MRI! All taking about six (6) hours! Man I'm getting good at angry birds! I have also decided that I'm going to take artsy pictures of waiting rooms. Now considering I'll pretty much be at the same hospital I might not have any more to take! I think i'm also already bored with the idea. But below is my work from today! yes...not my best work but a fun start non the less!

So to recap - pre op is done! Now we just wait on results to confirm if there are any other little surprises for us. As well as still waiting for my surgery date! I'll keep you posted!
Have a great week!
Friday, August 3, 2012
I got cancer and all I got was this pink notebook!
Ha, actually it's super cute and very handy! I only wish that it had a three ring binder in it! It's amazing the amount of paper work you accumulate! I've realized that this cancer thing is going to become a part time job. I'm determined that it will never be a full time job but I'm ok with part time. I'm hitting it head on like I do everything else in my life! The main thing now is just making sure I'm educated on all of the decisions I need to make. Man...what did people do before GOOGLE! Google is the sh*t! It really has been an amazing tool for the start of this journey.
Sooo I'm sure you are all wondering how the appointment with the plastic surgeon went yesterday?!? It was great! Andre had to work so my friend Kimberly went with me. Kim was actually with me at the korean day spa and has been one of my closest friend in LA for years. lol...you know you are close friends when you can share a hotel room on work trips (with your boyfriend in tow sometimes), spa together naked, and look at them with a straight face as a Dr has your breast in their hands and say - how much of this puppy should we take off!!
ok...back to basics
I would have been fine to go on my own but it really is comforting to have someone else there. Even if it is to look over and ask if there is anything else you forgot to ask! As you can imagine or if you know me at all..you know i'm a bit of a perfectionist and a devil about details. So the fact that the dr (we'll call her Dr. N) immediately showed me on me and drew a picture of what she was going to do was great. I'm a perfect candidate for this type of BCS - Breast Conserving Surgery. Is it weird that i'm totally excited about the surgery?!?!? It's two fold, ONE -I can't wait to know that that the cancer is out and TWO - I'm going to be a full C/small D cup!!!! I still have to laugh that I can loose half my breast and still possibly be a D. Do you even know what that means for shopping! I probably haven't been a C cup since 7th grade! I'm going to need an entire new wardrobe! Now don't get me wrong, I love the girls as much as everyone else. Trust me...i know they are as much a part of my personality and persona for lack of a better word as my hair and laugh! BUT...THEY GOTS TA GO! hee hee...and since we're talking boobs... they are going to look fabulous and high and perky! I apologize now to all of my male readers but Im sure you can appreciate good looking breast as well!
I should know today or tomorrow when the surgery will be set. I will be in the hospital for about 2 days and then I have to wait a month to heal before starting radiation. Oh another fun fact....radiation generally shrinks the breast 15% and can cause discoloration. Guess what the solution for this is....fat from another part of you body! Dude I am all in! Really this cancer thing is just an excuse for me to be totally LA and have plastic surgery. hahaha Did I mention insurance pays for all of it!!
Ok! Of to work! I spent 6 hours at archives yesterday repacking the boss for tour and i'm going to finish today. Ha there is so much work at archives that i'll be surprised if I get everything done before radiation starts!
Have a great Friday! xoxo
Thursday, August 2, 2012
One step at a time!
First I want to take a moment and say thank
you for all of the text, emails, and phone calls today. I know I said it before
but it really is something how many amazing people I have in my life! I
literally had to buy a new car charger today because my phone battery kept
running out! I promise I will do my best to respond to everyone!
Ok, so back to the info! I had my first
appointment with my surgeon on Monday, July 30th. Now the fact that my primary
made the appointment before I even had my biopsy kind of clued me in that there
might be something else going on. My primary had also loaded me up with a ton
of reading material so between that, Lizabeth and google I actually felt pretty
prepared for my appointment. Oh and of course Andre was in tow with his note
pad and pen as well!
After a few formalities and mountain of paper
work again I was back on a table for another ultrasound.
Yep...tumor was still there! Guess we really are here and this is real!
After the ultrasound we went to "the comfortable room" to talk about
what was next. My surgeon and I joked that the room really wasn’t that
comfortable but at least it didn’t feel like a hospital room! I really like my
surgeon. I immediately felt comfortable and confident in him. He didn’t beat
around the bush and was totally straightforward about everything. He commented
and commended me on how calm I was. I mean I know at some point I will probably
get anger and upset and scared and all of the above but all I can think right
now is what would that do? Now is the time for action! Ok…so yes…my life is on a bit of a stand still but hey! I’m getting
new perky boobs and some much needed time at home! Oh right cancer…back to what
the Doc was saying. So far cancer treatment seems like a pick your own
adventure book . Except you cannot go back and choose another answer if you do
not like your outcome!
First Chapter – Boobs! What to do with them?
A) Lumpectomy – they will
go in and remove the tumor as well as some healthy tissue around it.
a. Radiation
i. Chemotherapy
ii. Hormone therapy
1. Breast augmentation at
some point
B) Mastectomy – full
removal of the breast
a. Full reconstruction
i. Implants?
b. Chemotherapy
Second Chapter - What harmful crap needs to go into my body now?
A) Hormone Therapy - I am E3+ and HER2 -
B) Chemotherapy
Third Chapter - one step at a time! not there yet :)
A) Hormone Therapy - I am E3+ and HER2 -
B) Chemotherapy
Third Chapter - one step at a time! not there yet :)
Well of course me being me I made up my own! I
asked what he thought about a lumpectomy with a reduction. I mean…I’d always
wanted/ needed one. Why not use this cancer thing as an excuse to have
insurance pay for it right? To my delight he thought it was a great idea. Not
only would we be performing the lumpectomy but they would be removing a much
larger portion that would give them a better margin of getting everything.
Now, some of you are wondering why I’m not
contemplation a full mastectomy. Honestly I have no family history of breast
cancer, I’m young, we all know I have more then enough to loose half and still
have more then most of you reading this! Haha…sorry…might be a few that doesn’t
apply to!
My surgeon said it was purely as personal choice at this stage and that many
women choose it because they did not have the time or want to commit to
radiation. (we’ll get to that) Or mentally didn't or couldn't deal with the thought that there might still be cancer in the breast they still have.
So….I
choose to look into option C more! That takes us to my appointment today with a plastic surgeon.
Ok..so
the short version is this! My next step is a lumpectomy and removal of lymph
nodes. During the lumpectomy I am also contemplating a reduction. It will take about a week to get the biopsy
back and then we will be able to accurately stage my cancer and know if it has
spread anywhere else. Regardless I will then have to do radiation. I will go five
days a week for seven weeks. Good times!
Well…time
for me to get going. Lots to talk about today with the plastic surgeon!
Depending on what we decide will dictate when my surgery is but below is what i know so far
Thursday
August 2, 2012 – Consultation with plastic surgeon
Tuesday
August 7, 2012 – MRI – one last test of both breast to make sure there isn’t
anything we’ve missed before surgery (oh btw Happy Birthday Mom on this day)
August
15,16, or 17ish – Surgery
5 days
after – receive biopsy results and figure out what the next step is!
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